Proxy-reported outcomes (ProxRO) provide a means of capturing such data from patients who cannot self-report, and have been used in research and surveys to avoid what would be otherwise missing data. A proxy is a person who reports an outcome on behalf of a patient [ 4, 5 ]. Visa mer A systematic search of Medline (OVID), PsycINFO, PsycTESTS, CINAHL and EMBASE from database inception until 22 February 2024 was conducted, based on search terms developed in collaboration with an academic … Visa mer Articles were divided among reviewers. Each reviewer obtained the articles in full text and screened them against eligibility criteria. Review decisions and key data were recorded in an … Visa mer Original research articles that described the use and/or development of a proxy-reported measure of adult patient health outcomes (e.g. symptoms, health-related quality of life), … Visa mer We conducted two pilot training exercises in which each reviewer screened 100 titles and abstracts per exercise. Within each exercise, two independent reviewers assessed each title and abstract independently, and a … Visa mer WebbOutcome Measure Pediatric Quality of Life Initiative (PEDS QL) Sensitivity to Change Yes ... Parent proxy-report includes ages 2 to 4 (toddler), 5 to 7 (young child), 8 to 12 (child), ... Validated patient-reported outcomes responsive to clinical change are
Proxy-reported questionnaires for young children with asthma: a ...
Webb12 juli 2024 · July 12, 2024 - Proxy reports are a good stand-in for patient-reported outcomes when a patient can’t report their own symptoms or is otherwise incapacitated, … Webb10 juni 2015 · is an online research management tool that can be used to collect PROMIS data. The system enables researchers to create study-specific websites for capturing participant data securely for PROMIS instruments. . For researchers to access the PROMIS instruments registration is required. Studies can include measures within the … joaquin edward bello
Development of a New Quality of Life Measure for Duchenne ... - Neurology
Webb12 apr. 2024 · We measure both subglacial water pressure within the borehole with a water pressure sensor and till rheology with a ploughmeter inserted into the sediments at the bottom of the borehole. We use channel-flow-induced tremors recorded by a seismometer to characterize hydraulic conditions over a kilometre scale at the base of the glacier. WebbThe PedsQL Measurement Model is a modular approach to measuring health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. The PedsQL Measurement Model integrates seamlessly both generic core scales and disease-specific modules into one measurement system. The … Webb12 juni 2024 · DOI: 10.1177/0269216319854264 Corpus ID: 186203585; A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS) joaquin guzman indicted